Living with disabilities
African Storybook
Sibusiso Khumalo
Vincent is a reporter for RX Radio Station. He is at the RX Radio Studio to record his show.
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Today, Vincent’s program is with children living with serious health conditions.
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He is interviewing them about their experiences during the Covid-19 pandemic.
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“Hello listeners, this is Vincent at the RX Radio Studio. Today, my guests are Mulalo, Ashley, and Lina,” says Vincent.
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The guests introduce themselves.
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Vincent continues, “The Covid-19 pandemic was especially challenging for people living with disabilities. Please can you tell our listeners about that.”
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Mulalo begins, “I have a chronic illness named spinal muscular atrophy. It affects my muscles – my legs, arms, and breathing.
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If Corona virus and my illness had clicked together, they could have killed me! I have poor lungs and with that virus I would be doomed!”
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Lina says, “I was also very scared. I have a condition called asthma, which affects my lungs.
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If I coughed or had heavy breathing, I wasn’t sure if it was asthma or Corona virus. It would have affected my chest very badly.”
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Ashley adds her comment, “I have a condition called bipolar disorder. It affects my mental health and I need to take medication for it.
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Sometimes I feel extremely sad, or extremely angry. Sometimes my moods change very fast. It can be difficult to manage my feelings.”
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“Thank you for sharing those experiences with us. Was there anything positive for you during the pandemic?” asks Vincent.
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“I was able to spend more time with my family. We played board games together, and I really enjoyed that,” said Lina.
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“I also spent quality time with my family. Fortunately, I was able to medicate myself at home,” replies Mulalo.
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“I decided to use the time as an opportunity for the better. I bonded with my family. I also turned to God and prayed,” says Ashley.
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Vincent checks the clock on the studio wall. “Unfortunately, we’re already running out of time!” he says.
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“For other children that have also been diagnosed with a mental or physical illness, what words of encouragement can you share with them?” asks Vincent.
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Ashley answers first, “There’s a stigma out there when you have a mental disease or disorder.
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You’re perceived as either crazy or you’re looking for attention, and I want that to change. It’s ok not to be ok.”
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Lina agrees and says, “My advice to others is to be gentle with yourself. Be patient with yourself. You are doing the best you can.”
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Mulalo adds, “And don’t give up! There are challenges but you can still achieve your dreams.”
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Questions


  1. Write the meaning of these words: condition, chronic, stigma.
  2. Find words in the story that mean the same as: very, suggestion, chance.
  3. What does it mean “to be diagnosed with a mental or physical illness”?
  4. Was there anything positive for you during the pandemic?
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This storybook is based on reports for RX Radio. RX Radio is a children’s internet radio station, by and for children.
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RX Radio operates from the Red Cross War Memorial Children’s Hospital in Cape Town.
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RX Radio helps children to tell stories about issues important to them.
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Visit RX Radio
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Your attribution should include the following:
Title: Living with disabilities
Author/s: African Storybook
Illustrator/s: Sibusiso Khumalo
Assurer/s: African Storybook
Language: English

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